So before I continue with what a fabulous vacation it was, here is my current reality. Unedited. This is how #fibro works. For me. I busted my butt for the #vacay and now cannot move. Literally. All day. I have not gotten out of bed except to use the bathroom. I haven’t eaten yet (yes I’m starving). The kiddos have scavenged for themselves in the #camper (luckily there’s plenty of easy to make foods). The laundry and all else is still piled up inside the car. There’s absolutely no energy whatsoever to move and my body aches everywhere. Throughout the day, I have checked my social media, but haven’t had the energy to even post more. I have napped on and off all day long...which means that my boys have been stuck in the camper with me most of the day and are itching to get out... Vacation: so incredibly worth it. Aftermath: just something I deal with. I’m not complaining whatsoever...just sharing what #fibromyalgia can be like...to give others perspective. I’m grateful for the vacay, for my body not giving up completely on me during the trip (yes, there were many challenges, but I was able to muddle through most). I’m also grateful to my oldest for helping to make it all possible, for without her, we couldn’t have seen and done all that we did. I’m grateful to my boys for their best attempt at patience today. And I’m grateful for my little snuggler today. 🤪 #blogpost #spoonie #chronicillness

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So before I continue with what a fabulous vacation it was, here is my current reality. Unedited. This is how #fibro works. For me. I busted my butt for the #vacay and now cannot move. Literally. All day. I have not gotten out of bed except to use the bathroom. I haven’t eaten yet (yes I’m starving). The kiddos have scavenged for themselves in the #camper (luckily there’s plenty of easy to make foods). The laundry and all else is still piled up inside the car. There’s absolutely no energy whatsoever to move and my body aches everywhere. Throughout the day, I have checked my social media, but haven’t had the energy to even post more. I have napped on and off all day long...which means that my boys have been stuck in the camper with me most of the day and are itching to get out... Vacation: so incredibly worth it. Aftermath: just something I deal with. I’m not complaining whatsoever...just sharing what #fibromyalgia can be like...to give others perspective. I’m grateful for the vacay, for my body not giving up completely on me during the trip (yes, there were many challenges, but I was able to muddle through most). I’m also grateful to my oldest for helping to make it all possible, for without her, we couldn’t have seen and done all that we did. I’m grateful to my boys for their best attempt at patience today. And I’m grateful for my little snuggler today. 🤪 #blogpost #spoonie #chronicillness

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We all know that I have an affinity for crazy socks, but today I am wearing them for a purpose. March 21st is World Down Syndrome Awareness Day. Wearing “silly socks” represents accepting people who are different. Do you have your silly socks on today?? Show me! 😊 #loveall #worlddownsyndromeday #downsyndrome #downsyndromeawareness #disabilityawareness #weareallcreatedequal #acceptance #tolerance #differencesarebeautiful #developmentaldisabilities #momlife #moms #parenting #parents #sillysockday #blogpost #downsyndromeawarenessday

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All set for the #stpatricksday #parade tomorrow!! We are feeling pretty #irish these days!! Good luck has finally come our way!! 😊🍀☘️ must’ve been that leprechaun that I caught ! 😉🌈 🍀Happy St. Patrick’s Day to you all! ☘️ #stpattysday #blogpost #stpaddysday #lucky #luckoftheirish #luckotheirish #twins ##omlife #lovemyfamily #lovemykids #lovemyboys

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Guess who’s one month old!? Our little Sweet Pea!! She has been keeping me very busy! It’s been a wild ride so far! I’m sorry I haven’t been posting much lately. Between the lack of sleep, the other three kiddles, the house, the dog, you know...complete mayhem 🤪...I haven’t had much extra time. But she is doing great! She is 11 pounds already! So, she’s been growing about a pound a week. The good news is, is that she actually eats without me waking her now! I don’t have to keep her up constantly just to feed her for two or three minutes. She eats until she’s full and then goes back to sleep…But only in my arms. You forget how draining a #newborn can be, and I look forward to having more sleep at some point. 😴But I’m trying to live in each moment and cuddle her up! I know all too well how short this phase is! I’m not sure what is going on with me, but I’m wondering if the lack of sleep is flaring up my #fibromyalgia because my body hurts absolutely everywhere. I can’t seem to get a break from the pain. My neck is stiff, my back is achy, as are my arms and legs. I’ve been running a low-grade fever for several days, too. But I have no other symptoms other than a headache. I’ve never had a newborn baby while suffering from fibromyalgia, so I don’t know if it is that, but I never felt like this with the other babies. Who knows!? 🤷🏼‍♀️ For now, I guess it’s a good excuse to just snuggle with my Sweet Pea. 💗💕 #newbornphotography #newbornbaby #baby #imsotired #fibrowithnewborn #babylove #babiesofinstagram #fibro #chronicillness #blogpost

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Good news!! Although Sweet Pea does have a slight murmur, she’s going to be just fine!! Nothing that warrants even a follow-up appointment unless the pediatrician wants her to have one to check on it at 8 months when this type of murmur usually goes away. 😊 I’m feeling very grateful!! Thank you all for the kind words of support!!! #blogpost #newborn #momlife #momof4 #thankful #noheartdisease #sighofrelief #lovemybaby #lovemykids

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For those of you who are not on Facebook with me, a little update is in order. Sunday night, Sweet Pea was exhibiting signs of respiratory distress. So the pediatrician sent us to the ER to have her checked out. All test results came back okay and there was nothing emergent that needed to be addressed immediately, so we were sent back home to be followed by the pediatrician the next day. At the pediatrician’s yesterday, it turns out she has a slight heart murmur. So here I sit at the cardiologist’s waiting to have her tested to see what is going on. The pediatrician doesn’t believe this is going to be any kind of major issue, so I’m hoping for the best, but it’s still pretty worrisome and triggering to me because this is how it all started with Miracle Man originally. He had a slight murmur that ended up needing the heart surgery a couple of weeks later and has several other heart conditions that are being closely followed still. Many people have heart murmurs and do not need interventions. It just scares me because of Miracle Man’s history. But I’m going to stay positive and hope for great results today! This will be four ER/doc visits/appointments for her in four days...feels sooooo much like history repeating itself. #blogpost #congenitalheartdisease #heartmurmur #newborn #notthisagain #respiratorydistress

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